The purpose of this movement, Urban Families to Protect Autism, is to address and share the cultural, educational, medical, economic, and political issues that families with children diagnosed with autism in urban communities face everyday in order to raise awareness on reduce ignorance of these issues.

The framework of this movement is not based on avoiding autism or ‘healing’ it. Rather, the ideological focus is on raising awareness about autism, protecting against abuse against those diagnosed as autistic, and reducing the artificially-caused cases of autism, such as environmental destruction, vaccinations, poor medical services, etc.

There are hundreds of other autism organizations nationally and globally. However,
we feel what is unique about this one is its holistic framework, centering its analysis on culture and human rights, wholeheartedly tolerant of those already diagnosed with autism and protecting against the medical experimentation of vaccinations and prescription drugs that artificially increase the risks and symptoms of autism.

What is also unique is its bottom-up approach, gathering the urban community on a grassroots level to face the issue of ignorance that families in metropolitan areas struggle with.

We know that this movement will take time to really take form and do big things. But we're faithful that we can gather enough people on the grassroots level to really help us out on this. Autism has no discrimination and anyone can be diagnosed with it. This makes the movement that much more important because so many families from different walks of life, poor, rich, black, white, educated, non-educated, gay, heterosexual, struggle with the reality that their child may suffer from the symptoms of autism in a world that is increasingly antagonistic to this sensitive condition.

It is, thus, our responsibility as families and friends to raise awareness and protect autism together.

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AUTISM SPEAKS, BUT WHO IS SPEAKING?

Such a deceptive name.  After all, a fair number of autistics are unable to speak; the name Autism Speaks suggests an organization that is willing to speak on their part for greater acceptance and improved services that might enable them to more actively participate in the world while still being able to benefit from what strengths autism might provide.

And autism does have its associated strengths:  a dogged persistence; an ability to look at matters objectively and logically; an ability to focus on details that others might miss entirely.  If we get rid of the “bad” aspects of autism, we’re also likely to get rid of these traits that, to be honest, can be extremely advantageous in certain lines of work.

In truth, however, Autism Speaks is not very amiable to autistics.

First off, despite the group’s ostensible aim of speaking for autism, there is not one single autistic on its board of directors, or otherwise represented within the ranks of the organization.  There are plenty of autistics who are fully able to advocate for themselves, who are fully able to express what sort of support they would benefit from, and would have benefited from as children; however, Autism Speaks wants very little to do with them.

Secondly, and more importantly, read more»

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Nominee to Disability Council Is Lightning Rod for Dispute on Views of Autism - NY TIMES

When President Obama nominated Ari Ne’eman to the National Council on Disability, many families touched by autism took it as a positive sign. Mr. Ne’eman would be the first person with the disorder to serve on the council.

But he has since become the focus of criticism from other advocates who disagree with his view that society ought to concentrate on accepting autistic people, not curing them.

A hold has been place… read more»

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An Outbreak of Autism, or a Statistical Fluke?- NY TIMES

(image) Idil Abdull, with her autistic son, Abdulahi, said some children were sent back to Somalia in hopes of easing their autism.

MINNEAPOLIS — Ayub Abdi is a cute 5-year-old with a smile that might be called shy if not for the empty look in his eyes. He does not speak. When he was 2, he could say “Dad,” “Mom,” “give me” and “need water,” but he has lost all that.

He does scream and spit, and he moans a loud “Unnnnh! Unnnnh!” when he is unhappy. At night he pounds the walls for hours, which led to his family’s eviction from their last apartment.

As he is strapped into his seat in the bus that takes him to special education class, it is hard not to notice that there is only one other child inside, and he too is a son of Somali immigrants.

“I know 10 guys whose kids have autism,” said Ayub’s father, Abdirisak Jama, a 39-year-old security guard. “They are all looking for help.”

Autism is terrifying the community of Somali immigrants in Minneapolis, and some pediatricians and educators have joined parents in raising the alarm. But public health experts say it is hard to tell whether the apparent surge of cases is an actual outbreak, with a cause that can be addressed, or just a statistical fluke.


In an effort to find out, the Minnesota Department of Health is… read more»

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rubyvroom:

sanityscraps:

urbanfamiliestoprotectautism:

sanityscraps:

urbanfamiliestoprotectautism:

Vaccines Don’t Cause Autism, Pediatricians Do: By J.B. Handley
 
Our community has been giving pediatricians a hall pass for far too long.
 
If a doctor sticks six vaccines into a child while the child is taking antibiotics for an ear infection and Tylenol for a cold, he’s not a doctor, he’s a criminal, and should be hauled into jail on the spot for assault and battery. If the child also happens to have eczema, long-term diarrhea, and has missed a milestone or two, perhaps the charge should be attempted murder.
 
As you know, pediatricians do just this and more every day. How do we stop this recklessness?
 
If my son’s pediatrician had been more careful…

read more:

http://www.ageofautism.com/2010/01/vaccines-dont-cause-autism-pediatricians-do.html

Excuse me, but as I recall, the guy who said that vaccines cause autism in the first place admitted that he made the whole thing up. Furthermore, scientists here have proven that vaccines have no link at all with autism. The scientific community overwhelmingly agrees that vaccines and autism have no link whatsoever.

Your child was already autistic. It’s genetic, and just recently, another autism-related gene has been found. You already had an autistic child who happened to get a vaccine around the same time the symptoms started showing. That’s a coincidence of our chosen timing, and your child would still be autistic, vaccines or not, or even if they had gotten vaccines at another point in time.

I have to reblog this to address this person’s response.

  1. who is this guy who made it all up?
  2. not all cases of autism are directly caused by genetics. Even if there is evidence to prove this, that evidence would be looking at the cause of autism, or any other scientifically-perceived “disorder” from a specific tunnel-vision perspective. One can argue that any health challenge people face is caused by genetics. It’s a slippery slope argument because then you would support the conclusion that no one should receive healthcare, medicine, or services to support people who may be born with or may develop diseases, cancer, infections, or disorders that puts them in a disadvantage in a world that tries to separate them from a society that can’t handle them. if you do, that’s fine. to each their own.
  3. yes, we’ve heard the same counter-argument over and over again: scientists prove there is no link between autism and vaccines. however, by blindly believing sources citing that scientists disprove the link, you ignore the politics of the medical community. the pharmaceutical industry profits in the billions by vaccinating people. it’s a big business, and the last thing they want is someone proving that one of their most profitable products might actually cause a neurodevelopmental challenge that now affects 1 in 110 children. There was a recent case where a doctor allegedly proving the link between autism and vaccines was considered a fraud, an accusation he strongly denies. so you see, not all scientists (doctors are scientists too) believe that there is no link.
  4. injecting a newborn child, with a weak, developing immune system, with a dozen vaccines within a short amount of time, and on top of that being prescribed antibiotics. is that really safe? to protect from other possible diseases that may or may not occur? it’s like taking a pill with dozens of side effects to cure just one thing. i’d rather deal with the one thing or find natural alternatives to help.

we cannot continue to blindly accept the fact that every single vaccine given to us is for a greater good. There is poor evidence to support this fact (swine flu; flu vaccines)

  1. This guy. The original study is an “elaborate fraud.”
  2. Are you kidding me? Just about every family I know, including my own, affected by autism has some family history of it, diagnosed or not. They at least have a family history of other developmental disorders. Genes have been found linked to autism. It’s undoubtedly genetic.
  3. Oh please. Alternative medicine now? To paraphrase Tim Minchin, alternative medicine has either not been proved to work or been proved not to work. When alternative medicine has been proved to work, they call it medicine. Big Pharma is also a myth. Pharmaceutical companies are not swimming in cash, contrary to popular belief.
  4. Yes, it’s safe, and it saves lives from dying young of preventable diseases. Someone doesn’t understand how vaccines work. They are rendered harmless just so the immune system can make antibodies for it. They very rarely result in any complications at all.

the genetic history may be different for other families. my family for example doesn’t have any history of autism diagnosis. this, though, may be because it hasn’t been until mid 1900s that doctors began diagnosing for autism, thus the increased prevalence of autism over the past decades.

i am all for natural drug and therapeutic alternatives. i do not trust artificially medical solutions to health problems. we are born with capable bodies that adjusts as nature sees fit. healing a health problem is our society’s obsession to stigmatize a difference in someone’s nature as inferior and find a quick fix for it. this may not be the case for all health problems, but there are better alternatives to a cough or fever than simply taking a pill or vaccinating to make it go away, alternatives as easy as changing your diet.

sanityscraps is awesome and has a lot more patience with this person than I would. I find anti-vaxxers to be generally beyond the reach of reason, and I hold them personally responsible for the recent outbreaks of measles and whooping cough that have killed young children. Your ill-informed crusade is killing children, you selfish assholes.

But just to jump on this bit: however, by blindly believing sources citing that scientists disprove the link, you ignore the politics of the medical community. the pharmaceutical industry profits in the billions blah blah blah blah I’m bored now. People’s conceptions of how the medical community works are just completely off the wall, this assumption in particular. The vast majority of medical research is conducted at academic institutions through government grants, where the pharmaceutical industry has very little if any input. There are rules about disclosing ties to industry when you publish to a medical journal. You cannot publish without full disclosure of your professional relationships including especially any money that has changed hands. They are incredibly strict about this. So all of those papers investigating the supposed link between vaccines and autism? Unless they specifically list a pharmaceutical company’s involvement, none of the authors of the paper have anything to do with the pharmaceutical industry. Much less made piles of money from distributing vaccines.

Medical research is extremely unprofitable, actually. I should know, I’ve been doing it for 10 years. You have to beg and plead for money at every turn for materials, space, employees, everything. Constantly. If you get the money one year, the next year you have to ask for it again. Your pay is entirely dependent on whether the National Institute of Health feels like giving you money. And you don’t get paid some kind of prize for publishing a paper or profit from the results, unless you go off and patent something you discover (and that’s awfully rare). Most doctors who do research have to also do full-time doctoring on the side because they don’t make any money running a research team, even if they’d much prefer doing just research. I’ve done clinical duties as well, just because the grants couldn’t cover me full-time.

You know what does make loads of money? Pimping alternative medicine cures that never have to be proven, aren’t monitored, and don’t even have to actually work for it to be sold over and over again.

You know who intended to make money from “vaccines cause autism” research? Andrew Wakefield. Who made up the original paper that caused the vaccine scare, falsified his research and got his medical license pulled for it.

i respect your experience in medical research. what bothers me though, is the insane profits that the pharmaceutical industry sector, in general, make, compared to other financial sectors. many companies abuse their freedom of medical research to experiment on populations with the drugs and vaccines they make, resulting in more harm than good, like the Guatemalan experiments in the 40s, the Tuskegee syphillis experiements, experiments conducted in Puerto Rico and on Native American preserves here in the US that have made many women sterile. This may not be the case for all drug companies, but some have seriously endangered the lives of many people.

which goes back to the article, which argues to blame the doctors that authorize vaccinations. vaccines are out there, people argue on both sides whether they’re good or bad. i’m on the fence. i do believe that vaccinations were created with good intent, but it’s been recently abused. required vaccinations have increased over the years while the age to administer them has gone down.

what worries me the most is the trust that parents have in their doctors to take care of their child. they will blindly accept anything a doctor says because doctors obviously know more. so when they get their kids vaccinated, and then all of a sudden their children don’t talk, don’t walk, don’t smile, don’t look when someone calls them, all these signs, the first thing they think about is the vaccines. before the vaccines they were fine, then after all these differences. this is why so many people have opposed vaccines.

• Photo Post

sanityscraps:

urbanfamiliestoprotectautism:

Vaccines Don’t Cause Autism, Pediatricians Do: By J.B. Handley
 
Our community has been giving pediatricians a hall pass for far too long.
 
If a doctor sticks six vaccines into a child while the child is taking antibiotics for an ear infection and Tylenol for a cold, he’s not a doctor, he’s a criminal, and should be hauled into jail on the spot for assault and battery. If the child also happens to have eczema, long-term diarrhea, and has missed a milestone or two, perhaps the charge should be attempted murder.
 
As you know, pediatricians do just this and more every day. How do we stop this recklessness?
 
If my son’s pediatrician had been more careful…

read more:

http://www.ageofautism.com/2010/01/vaccines-dont-cause-autism-pediatricians-do.html

Excuse me, but as I recall, the guy who said that vaccines cause autism in the first place admitted that he made the whole thing up. Furthermore, scientists here have proven that vaccines have no link at all with autism. The scientific community overwhelmingly agrees that vaccines and autism have no link whatsoever.

Your child was already autistic. It’s genetic, and just recently, another autism-related gene has been found. You already had an autistic child who happened to get a vaccine around the same time the symptoms started showing. That’s a coincidence of our chosen timing, and your child would still be autistic, vaccines or not, or even if they had gotten vaccines at another point in time.

I have to reblog this to address this person’s response.

  1. who is this guy who made it all up?
  2. not all cases of autism are directly caused by genetics. Even if there is evidence to prove this, that evidence would be looking at the cause of autism, or any other scientifically-perceived “disorder” from a specific tunnel-vision perspective. One can argue that any health challenge people face is caused by genetics. It’s a slippery slope argument because then you would support the conclusion that no one should receive healthcare, medicine, or services to support people who may be born with or may develop diseases, cancer, infections, or disorders that puts them in a disadvantage in a world that tries to separate them from a society that can’t handle them. if you do, that’s fine. to each their own.
  3. yes, we’ve heard the same counter-argument over and over again: scientists prove there is no link between autism and vaccines. however, by blindly believing sources citing that scientists disprove the link, you ignore the politics of the medical community. the pharmaceutical industry profits in the billions by vaccinating people. it’s a big business, and the last thing they want is someone proving that one of their most profitable products might actually cause a neurodevelopmental challenge that now affects 1 in 110 children. There was a recent case where a doctor allegedly proving the link between autism and vaccines was considered a fraud, an accusation he strongly denies. so you see, not all scientists (doctors are scientists too) believe that there is no link.
  4. injecting a newborn child, with a weak, developing immune system, with a dozen vaccines within a short amount of time, and on top of that being prescribed antibiotics. is that really safe? to protect from other possible diseases that may or may not occur? it’s like taking a pill with dozens of side effects to cure just one thing. i’d rather deal with the one thing or find natural alternatives to help.

we cannot continue to blindly accept the fact that every single vaccine given to us is for a greater good. There is poor evidence to support this fact (swine flu; flu vaccines)

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